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Subscribe to our Newsletter

Sign up to become a member to receive our bi-monthly newsletter. The newsletter includes information about managing and living with ME/CFS, latest research, our activities, plus more.

Latest News

We plan to share key updates about ME/CFS, Long COVID, and our organisation here. If you remember seeing a notice about new guidance or initiative in our newsletter or social media and want to revisit the details, it will be worth checking the updates listed below.

6 May 2026

World ME Day - Press Statement from ANZMES

As we approach World ME Day on 12th May, ANZMES have released a powerful national press statement

World ME Day - Press Statement from ANZMES

26 Apr 2026

Check out our display at Tūranga Library for World ME Day

A big thank you to the librarians at Tūranga, the central Christchurch City Libraries Library, for helping us to profile ME/CFS for this World ME Day.

Check out our display at Tūranga Library for World ME Day

22 Apr 2026

Registered Nurse Vacancy

We are looking for another part time Registered Nurse

Registered Nurse Vacancy

22 Apr 2026

Work and Income Advocate Vacancy

We are looking for another part time Work and Income Advocate to join our team.

Work and Income Advocate Vacancy

20 Apr 2026

ME/CFS Awareness Mugs for Blue Sunday 2026

Support a Cause with Every Cup

ME/CFS Awareness Mugs for Blue Sunday 2026

20 Apr 2026

Recording for Energy Management presentation now available

Nurse Wendy Dragt shares guidelines for managing our energy when we live with a broken energy system

Recording for Energy Management presentation now available

19 Apr 2026

New Primary Health Care Resource for adults with Long COVID

The School of Health, Victoria University of Wellington, has published a new Long COVID resource for GPs. Epidemiologist, Dr Mona Jeffreys, talked to us about how the resource was developed and how GPs can access it.

New Primary Health Care Resource for adults with Long COVID

15 Apr 2026

Our April 2026 newsletter is now available!

Theme for this issue is Long COVID. We highlight recent articles in the media and a new Long COVID Primary Care Resource

Our April 2026 newsletter is now available!

12 Apr 2026

Blue Sunday - The Tea Party for ME

Blue Sunday, created by Anna Redshaw, is a special day where people come together over a cuppa and some cake to raise awareness and funds for those living with ME/CFS.

Blue Sunday - The Tea Party for ME

10 Apr 2026

The 2026 Crash Wear Design Competition

Feeling creative and got some extra spoons? Turn them into something that speaks for our community with our Crash Wear Design Competition.

We’re looking for ME/CFS or Long Covid themed designs for our Crash Wear merch, something that captures the lived experience of ME/CFS and Long Covid.

The 2026 Crash Wear Design Competition

29 Mar 2026

Wanting to try out seated Tai Chi?

Recording of a seated Tai Chi session for people with ME/CFS is now available

Wanting to try out seated Tai Chi?

16 Feb 2026

Dysautonomia New Zealand

Today we want to congratulate the team involved in the establishment of Dysautonomia New Zealand and their progress in becoming a registered charity.  

Dysautonomia New Zealand

19 Jan 2026

ME/CFS a Brief Introduction

A brief introduction to Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

ME/CFS a Brief Introduction

18 Jan 2026

Associated New Zealand ME Society (ANZMES) Survey 2026

Share your voice

Associated New Zealand ME Society (ANZMES) Survey 2026

19 Nov 2025

Give-a-little Day 2nd December 2025

Radical Rest Challenge - Nominate a friend or two (or yourself)

Give-a-little Day 2nd December 2025

11 Nov 2025

ME CFS Canterbury Registered Nurses attend RID2025

The 4th International Conference on ME/CFS, Long Covid and Gulf War Illness

ME CFS Canterbury Registered Nurses attend RID2025

31 Oct 2025

It’s our 40th Ruby Anniversary!

Thank you to the individuals and funders who have supported our journey since we became a charity in 1985.

It’s our 40th Ruby Anniversary!

8 Oct 2025

October is Dysautonomia Awareness Month

Dysautonomia often appears invisible, but it has a significant impact on daily life.

October is Dysautonomia Awareness Month

5 Oct 2025

Mental Health Awareness Week 5-12 October 2025

When living with chronic illness it is natural to grieve the losses and find it difficult to cope with at times.

Mental Health Awareness Week 5-12 October 2025

3 Oct 2025

New West Coast Peer Support Group

Join our new facebook group for people affected my ME/CFS and Long Covid living on the West Coast

New West Coast Peer Support Group
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