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Sign up to become a member to receive our bi-monthly newsletter. The newsletter includes information about managing and living with ME/CFS, latest research, our activities, plus more.

Latest News

We plan to share key updates about ME/CFS, Long COVID, and our organisation here. If you remember seeing a notice about new guidance or initiative in our newsletter or social media and want to revisit the details, it will be worth checking the updates listed below.

6 May 2025

BHC publishes Clinical Care Guide

The Bateman Horne Centre based in Utah, USA, is one of the leading ME/CFS clinical education organisations in the world. In May they released an excellent 96 page ‘Clinical Care Guide: Managing ME/CFS, Long COVID...'

BHC publishes Clinical Care Guide

4 Apr 2025

Ehlers-Danlos Syndrome (EDS) and Hypermobility Disorders presentation

Wendy Dragt, a nurse at MECFS Canterbury, recently presented an overview of Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD) for us.

The talk covered definitions, diagnosis, management, plus more.

Ehlers-Danlos Syndrome (EDS) and Hypermobility Disorders presentation

28 Oct 2021

NICE releases new guidance for ME/CFS

The National Institute for Health and Care Excellence (NICE, UK) has today, Friday 29 October 2021, published the guideline for ME/CFS: diagnosis and management, after a robust 3 year review process.

NICE releases new guidance for ME/CFS

24 Oct 2021

Article in The Spinoff discussing support needed for people with long Covid

Tom Harris, a member of MECFS Canterbury, writes for The Spinoff and asks ‘If you get long Covid, who’s going to help?’

Article in The Spinoff discussing support needed for people with long Covid

4 Sept 2021

Mayo Clinic releases new consensus clinical guidance for ME/CFS

The Mayo Clinic Proceedings publication has recently published a consensus recommendation article for ME/CFS written by the ME/CFS Clinician Coalition.

It is exciting that another leading health care publication is sharing up-to-date evidence based information about ME/CFS.

Mayo Clinic releases new consensus clinical guidance for ME/CFS

25 Jun 2021

New guidance from CDHB for physiotherapists 

We are delighted to announce that physiotherapists who have access to the Allied Healthways website provided by the CDHB now have appropriate advice available in the PhysioFITT guidance for ME/CFS.

New guidance from CDHB for physiotherapists 
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