‘I feel trapped’: 29-year-old Wellington woman hasn’t left upstairs bedroom for four months

In this article Paddy Gower interviews Elvira Edmonds who has lived with ME/CFS for three years, and over the past year it has left her mostly bedbound, since February she hasn't been able to leave her upstairs bedroom. 

Despite this, ME/CFS still isn't recognised by the government as a disability, this means people with ME/CFS can't access care supports available to those with recognised disabilities.  Right now, those with the most severe symptoms are often left with only a few hours of care a day despite needing round the clock support.

www.stuff.co.nz

Elvira Edmonds is mostly bed-bound with severe ME. But the disease is not recognised as a disability in New Zealand.