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Our August 2026 newsletter is now available!

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25 Aug 2026

Theme for this issue is responses in our annual survey. We also highlight some new guides for Ehlers-Danlos Syndrome and Dysautonomia

We hope that you find something of interest in our latest newsletter.


The newsletter includes the following items:


  • Team updates including a heartfelt farewell to nurse Wendy Dragt

  • Upcoming meetings

  • Introducing our new Board Trustees - Sarah, Roslyn and Geraldine

  • Feedback received in our Annual Survey

  • New guides for Ehlers-Danlos Syndrome and Dysautonomia

  • How to check you are enrolled for the general election and options for voting

  • plus more.




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