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Find Support After an ME/CFS or Long Covid Diagnosis in Canterbury and the West Coast

21 Jun 2026

Being told you have Myalgic Encephalomyelitis (ME/CFS) or Long Covid can feel overwhelming and isolating.

You may be struggling to find people who truly understand what you are going through, or healthcare professionals who take your symptoms seriously.

If you are based in Canterbury or the West Coast of New Zealand, you do not have to navigate this alone.


A Community That Gets It 


ME/CFS Canterbury / West Coast runs a free, private Facebook support group for people living with ME/CFS (also known as Chronic Fatigue Syndrome) and Long Covid in the Canterbury and West Coast regions of Aotearoa New Zealand.

This is a space where you do not need to explain yourself. Members understand the reality of post-exertional malaise, the unpredictability of symptoms, and the frustration of conditions that are still poorly understood by many in the medical system.

Join the group here: ME/CFS Canterbury West Coast Support Group on Facebook


Who Is the Group For?

The group is open to:

 

People newly diagnosed with ME/CFS or Long Covid, or currently awaiting a diagnosis

People who have been living with ME/CFS or Long Covid for years

Carers and whanau supporting someone with either condition

 

Whether you have mild symptoms or are severely affected, you are welcome.


What to Expect 

This is a peer support space, not a medical advice forum. Members share experiences, practical tips, local resources, and simply the comfort of being understood. It is moderated to keep the space safe and respectful.


About ME/CFS Canterbury West Coast 

ME/CFS Canterbury West Coast is a community organisation supporting people affected by Myalgic Encephalomyelitis and Long Covid across the Canterbury and West Coast regions. We receive no government funding. So much of what we offer this community exists because of dedicated volunteers who show up alongside our small team.

We provide information, advocacy, and peer connection to help people and their whanau feel less alone and better equipped to navigate life with these complex illnesses.


Ready to Connect?

If you are newly diagnosed, still seeking answers, or simply looking for people who get it, we would love to have you in the group.

Join the ME/CFS Canterbury West Coast Support Group on Facebook

 

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