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Latest News

We plan to share key updates about ME/CFS, Long COVID, and our organisation here. If you remember seeing a notice about new guidance or initiative in our newsletter or social media and want to revisit the details, it will be worth checking the updates listed below.

22 Sept 2025

New Health Information page for ME/CFS from Health NZ

Health NZ has acknowledged that ME/CFS is a debilitating, long-term illness in the new Health Conditions section on their website.

1 Sept 2025

Orthostatic Intolerance and its management Presentation

We invite you to watch Nurse Wendy Dragt’s talk about Orthostatic Intolerance (OI) and its Management – now available on our youtube channel

1 Aug 2025

Join our quiet act of solidarity for people with severe ME/CFS on 8th August 8pm

#LightsLowForME creates a visible, low effort way for allies to show solidarity while honouring the often-invisible suffering of people with severe ME

18 Jul 2025

Launch of our Crash Wear merch range

Crash Wear is a collection designed with the ME/CFS community at heart - whether you live with it, care for someone who does, or advocate for awareness. Wear your story. Support your community.

12 May 2025

New clinical guidance for ME/CFS on HealthPathways

Announcing updated guidance for clinicians in Canterbury and West Coast from Health NZ.

We encourage health professionals who have access to HealthPathways to become familiar with the extended guidance for diagnosis, treatment and management of this debilitating condition.

8 May 2025

ME/CFS and its Management Presentation

We invite you to watch Nurse Wendy Dragt’s talk about Myalgic Encephalomyelitis / Chronic Fatigue Syndrome and its Management – recording now available on our youtube channel.