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Latest News

We plan to share key updates about ME/CFS, Long COVID, and our organisation here. If you remember seeing a notice about new guidance or initiative in our newsletter or social media and want to revisit the details, it will be worth checking the updates listed below.

6 Oct 2025

Mental Health Awareness Week 5-12 October 2025

When living with chronic illness it is natural to grieve the losses and find it difficult to cope with at times.

4 Oct 2025

New West Coast Peer Support Group

Join our new facebook group for people affected my ME/CFS and Long Covid living on the West Coast

22 Sept 2025

New Health Information page for ME/CFS from Health NZ

Health NZ has acknowledged that ME/CFS is a debilitating, long-term illness in the new Health Conditions section on their website.

1 Sept 2025

Orthostatic Intolerance and its management Presentation

We invite you to watch Nurse Wendy Dragt’s talk about Orthostatic Intolerance (OI) and its Management – now available on our youtube channel

1 Aug 2025

Join our quiet act of solidarity for people with severe ME/CFS on 8th August 8pm

#LightsLowForME creates a visible, low effort way for allies to show solidarity while honouring the often-invisible suffering of people with severe ME

18 Jul 2025

Launch of our Crash Wear merch range

Crash Wear is a collection designed with the ME/CFS community at heart - whether you live with it, care for someone who does, or advocate for awareness. Wear your story. Support your community.