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Subscribe to our Newsletter

Sign up to become a member to receive our bi-monthly newsletter. The newsletter includes information about managing and living with ME/CFS, latest research, our activities, plus more.

Latest News

We plan to share key updates about ME/CFS, Long COVID, and our organisation here. If you remember seeing a notice about new guidance or initiative in our newsletter or social media and want to revisit the details, it will be worth checking the updates listed below.

19 Apr 2026

New Primary Health Care Resource for adults with Long COVID

The School of Health, Victoria University of Wellington, has published a new Long COVID resource for GPs. Epidemiologist, Dr Mona Jeffreys, talked to us about how the resource was developed and how GPs can access it.

New Primary Health Care Resource for adults with Long COVID

15 Apr 2026

Our April 2026 newsletter is now available!

Theme for this issue is Long COVID. We highlight recent articles in the media and a new Long COVID Primary Care Resource

Our April 2026 newsletter is now available!

12 Apr 2026

Blue Sunday - The Tea Party for ME

Blue Sunday, created by Anna Redshaw, is a special day where people come together over a cuppa and some cake to raise awareness and funds for those living with ME/CFS.

Blue Sunday - The Tea Party for ME

11 Apr 2026

The 2026 Crash Wear Design Competition

Feeling creative and got some extra spoons? Turn them into something that speaks for our community with our Crash Wear Design Competition.

We’re looking for ME/CFS or Long Covid themed designs for our Crash Wear merch, something that captures the lived experience of ME/CFS and Long Covid.

The 2026 Crash Wear Design Competition

30 Mar 2026

Wanting to try out seated Tai Chi?

Recording of a seated Tai Chi session for people with ME/CFS is now available

Wanting to try out seated Tai Chi?

17 Feb 2026

Dysautonomia New Zealand

Today we want to congratulate the team involved in the establishment of Dysautonomia New Zealand and their progress in becoming a registered charity.  

Dysautonomia New Zealand
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